Comments for blog.limedaley.com/post/apartment-life

Comment #3388

2024-03-28T14:09:17Z

The clinic was okay. She needed fluid, which I expected and the doctor said she needs at least 325 ml of water every day.

She was borderline on her hemoglobin count, so they did some red blood cells as well, which takes three hours.

They lowered her cyclosporine and magnesium prescription a little bit.

I just counted cashew calories, approximately 9 calories each.

Last night she gagged on her foam toothbrush and vomited up her NG tube, but fortunately, she had most of her formula for the day, and I think with her breakfast and lunch, covered her minimum calories for the day. So we have another appointment today to get a new one.

Comment #3387

2024-03-28T00:35:54Z

Thank you for the updates. I also love the cuddling picture. Continuing prayers for Grace and the family. God is good. God Bless

Comment #3386

2024-03-27T21:32:13Z

Thank you for the updates. I hope it won't be too long before you are able to go home. Love to all.

Comment #3385

2024-03-27T18:37:39Z

so love the updates....and I marvel at all of your strength! All being each one of you....you are an inspiration! Love to all of you today and always.

Comment #3384

2024-03-27T17:23:38Z

Thank you for the updates! We are continually praying for you all.

Comment #3383

2024-03-27T17:15:47Z

I sure hope your apartment has a washer and dryer.

How was clinic?

Comment #3382

2024-03-27T11:49:47Z

So thankful for each update, helping is to pray with knowledge. I was so happy to cross paths with Heather & baby yesterday in Hillsboro, and to sing a Keith Green song with Jonathan, and to give hugs all around. Praying on!

Comment #3381

2024-03-27T11:45:16Z

She had a big breakfast today, so I'm working on counting calories, so just documenting for later.

Formula is 237 ml and 1 kcal/ml (everyone measures in kcals, the formula bottle is just being more precise, right?), so their caloric goal for her is 720 kcal/day.

The pasta (Shaws generic brand) is 200 calories per half cup (dry), and by my count, there are 280 pieces per half cup. So, even her "big breakfast" of probably 20 or 30 pieces, was 14-21 calories.

She asked for an English muffin, but didn't even touch it today - usually she does eat part of it at least.

She did eat 5 or 6 cashews, which I'll have to calculate the caloric content later, since we are now headed to the clinic.

Comment #3380

2024-03-27T11:22:35Z

I love, love, love that cuddling picture!

Comment #3379

2024-03-27T11:15:06Z

She was happy to see her, but I think I probably thought it was more fun than she did.

Comment #3378

2024-03-27T05:26:36Z

How did Grace react to seeing Heather on TV?

Comment #3377

2024-03-27T05:18:23Z

Yeah, she can eat anything she wants. She typically doesn't eat much of any one thing, but will often ask for lots of different kinds of food - she has always been a person who wanted all of her food lined up and she would take one bite of each thing and pretty consistently go round-robin style.

These days, there is more that doesn't taste right (chemo side-effect), but fortunately, she is still willing to keep trying - apparently, lots of kids give up on eating since it doesn't taste right.

She hasn't been too interested in ice cream (or milk shakes - that was one thing the nutritionist really wanted her to eat when admitted, to get more calories per bite.

She does eat cashews at most meals. Heather does wonder if there is a dairy sensitivity still, but it isn't anywhere near as bad as it used to me. She does prefer almond milk over cow milk currently.

Comment #3376

2024-03-27T03:09:29Z

Praying that Grace is able to bulk in those extra calories!!! With her allergies all cleared, does that mean she can have ice cream every night now? Praying also for clear answers on the duration of your Boston-life, and the logistics for how to function as a family once everyone is HOME again!

We love you all!

Comment #3375

2024-03-27T03:03:54Z

Thank you so much for your updates.