Comments for blog.limedaley.com/post/testing-preliminary-results

Comment #3687

2025-11-14T01:14:29Z

I remember as a child asking to have spinach, like Popeye. So my mother bought a can ("like Popeye") for me. I was shocked when we opened it because the spinach was green, not black.

Comment #3686

2025-11-14T01:03:42Z

I have seen Popeye, though our kids might not. We've watched some old cartoons, but not those I think.

Boston said it might make sense to have Faith checked again by the PCP, though they said that thyroid issues aren't transmitted through the bone marrow, but I did read some case studies that said it can, though probably rare, like everything else...

I took part in a MEK inhibitor webinar conversation today put on by NF Collective and learned that among the 1 in 3,000 people that have NF1, there are 1 in 5 that have plexiform neurofibromas that could potentially be treated by a MEK inhibitor. (And so the other 4 in 5 either have PNs too small or "only" have cutaneous fibromas, though they made a joke about pain tolerances among most NF1 patients:

Doctor: How much pain are you having?

Patient: Oh, I don't know, the normal amount.

Doctor: Well, normal is zero pain.

Patient: ????

Comment #3685

2025-11-13T12:07:11Z

Thank you for the update. We are thinking of you all!

The comment about the low iron made me think about Popeye and spinach and then I realized that Grace (and possibly her parents) have never seen the old cartoons.

Hugs to everyone.