2019-03-25T10:40:05Ztag:sursumcorda.salemsattic.com,2018:/isso/thread/post/eradication-is-neither-prevention-nor-curetag:sursumcorda.salemsattic.com,2018:/isso/792/30802019-03-25T10:40:05ZSursumCorda<p>I too am very grateful not to have been given this challenge, but we know a couple of families who have embraced it, just as another family I know embraced their daughter who was born with only one arm, and another whose child has daunting chromosomal challenges much rarer than Down's. Not to mention my friend who lovingly and sacrificially cares for her mother who has dementia. We do what we have to do.</p> <p>Our Swiss daughter has friends who sacrificed a good deal to adopt a girl from Armenia with Down Syndrome, and from what I hear they've so far considered her well worth the cost.</p> <p>Perhaps not as much as with the autism spectrum, but there are differing degrees of disability with Down Syndrome also, and the prognosis is better today than in the past. In the comments on <a href="http://www.downsyndromeprenataltesting.com/cure-for-down-syndrome-promised-with-just-a-single-injection/" rel="nofollow noopener">this article</a>, people are split on the issue of trying the gene therapy (if it becomes available) for their children. For some the difficulties are so great they would take the chance; for others, they would not do anything that would risk changing the personalities of the children they love and admire.</p>tag:sursumcorda.salemsattic.com,2018:/isso/792/30792019-03-25T02:20:51ZGrace Kone<p>I am currently reading a work of Sci Fi fiction, where the heroine has autism. A first in my reading experience. She is also a genius at the job she has chosen to do and at fast thinking in general. And yes, it's likely the autism and the genius are somehow linked. But when it comes to Down's syndrome, I have witnessed the horrendous problems of a particular family in CT and find this a dilemma I can only thank God I have been spared.</p>tag:sursumcorda.salemsattic.com,2018:/isso/792/30782019-03-21T22:56:39ZSursumCorda<p>Temple Grandin has stated that if there were a cure for her autism, she would refuse it.</p>tag:sursumcorda.salemsattic.com,2018:/isso/792/30772019-03-21T22:18:37ZSursumCorda<p>Good question. I know next to nothing about it. <a href="http://www.downsyndromeprenataltesting.com/cure-for-down-syndrome-promised-with-just-a-single-injection/" rel="nofollow noopener">This article</a> popped up in a Google search and seems to hit many of the issues. The possibility of gene therapy in the future is in the air enough to be raising the question. The same ethical dilemma has already been faced by Deaf parents of Deaf children over the <a href="https://en.wikipedia.org/wiki/Cochlear_implant#Criticism_and_controversy" rel="nofollow noopener">cochlear implant</a>. There will be no easy answers.</p>tag:sursumcorda.salemsattic.com,2018:/isso/792/30762019-03-21T21:57:23ZDiane Villafane<p>What about genetic engineering/CrisperCas9?</p>